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Services for Children and Young People
Young Action Online works in partnership with
The Young ME Sufferers Trust (charity number 1080985)

Tymes Trust is the longest established national UK service for children and young people with ME and their families. It is a respected national charity whose entire professional team give their time free of charge. They work constantly with doctors, teachers and other specialists, and played a major role in producing the children’s section of the Dept of Health Report on CFS/ME (2002). Lord Clement-Jones CBE, Liberal-Democrat House of Lords Spokesman on Health Tymes Trust Patron

In 1989, two young people with ME published the first Tymes Magazine to give children with ME a voice. For the first time, there was a place for them to share experiences and needs. Tymes Trust became fully registered in June 2000 and now offers a full range of services. We also regularly supply expert information and are consulted by doctors and education specialists as well as families and the press.

The Trust works with NHS Direct, ChildLine, the National Association of Educational Inspectors, Advisers and Consultants, the Nisai/Iris Partnership (education), the National Association for the Education of Sick Children, and has Partner ME Groups around the UK.

The Trust is also a member of the ME Alliance of charities and the Chief Medical Officer’s Working Group on CFS/ME. We liaise with the Departments of Health and Education and supplied specialised information to Lord Clement-Jones for his speech during the Lords debate on the Special Educational Needs Bill in December 2000.

Tymes Trust Executive Director Jane Colby is a former head teacher, member of the National Association of Educational Inspectors, Advisers and Consultants, the National Association of Head Teachers, the Society of Authors, and the UK government Chief Medical Officer’s Working Group on CFS/ME. Jane is a medical educator and professional author who writes for children as well as for adults, edits Tymes Magazine and the ME Library of specialist articles at www.youngactiononline.com. She co-authored the largest ever epidemiological study of ME.

Children with ME are frequently unable to travel in order to meet others in person. Our personal approach is tailored to alleviate this sense of isolation and many youngsters have made friends of their own age through us.

You can find out about and register for services from the Trust on their site, here.