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Information Sheet on Jane Colby
Executive Director, Tymes Trust
Editor of Tymes Magazine (The Young ME Sufferer)
Member of UK Government Chief Medical Officer's Working Group on CFS/ME
Medical educator and author
Co-author of the BBC Panorama survey on ME in children (televised Nov. 1999)
Co-author of largest study of ME worldwide: ME
in UK Schools, Journal of Chronic Fatigue Syndrome (1997). The largest
epidemiological study of ME available to date, studying a sample of 333,000
schoolchildren and 27,000 staff over a 5 year period.
Key findings: 51% of pupils on long-term sick leave from school had ME
(greater than any other condition); ME appears in clusters in school staff and
pupils.
Author of ME - The New
Plague - first book to explore the strong link between ME and polio
myelitis
£12.95 from Dome Vision
Author of Zoe's Win
- small child-friendly book for children with ME, their families and professionals
with special section for teachers
£7.95 from Dome Vision or order online via www.youngactiononline.com
An "easy-read" dramatisation of a young person's struggle with ME
with advice section and information for families, young people, teachers, doctors,
schools. Recommended by paediatricians Dr Nigel Hunt and Dr Alan Franklin, and
by ME specialists Dr Darrel Ho-Yen and Dr Anne Macintyre. Contains a GPs Action
Framework and a Teacher's Code.
Former Headteacher (25 years teaching experience,
9 as Head Teacher)
Member, National Association of Educational Inspectors, Advisors and Consultants
Member, National Association of Head Teachers
Member, Society of Authors; National Association of Writers in Education
Member, Association of Freelance Journalists
Also author of : Guidelines for Schools, AfME Children's Charter and the teachers resource He Hit Me First (How to Beat Bullying in the Primary School); articles in The British Journal of Special Education, GP Magazine, Special Children, other specialist journals and national press e.g. Sunday Times, Independent, Sunday Mirror. Author and commissioning editor for the ME library of free documents on the internet at www.youngactiononline.com and co-author, GPs Good Practice Guide to Education for Children with ME (with Dr Nigel Hunt). Editor of Tymes Magazine (published by the Tymes Trust).
Jane Colby is now in recovery from ME herself after a severe Coxsackie B infection disabled her in 1985. Presently Executirve Director of Tymes Trust, she has worked with all the major national ME charities, was Children's Officer for Action for ME for three years and is on the Advisory Council to PRESENT (the National Association for the Education of Sick Children).
Contact details:
via Tymes Trust or YAOnline at: PO Box 4347, Stock, Ingatestone, CM4 9TE.
Email: jane@youngactiononline.com
Website: www.youngactiononline.com
Tel/Fax: 01245 401080
For urgent communications, fax 01277 841710
Young Action Online PO Box 4347 Stock Ingatestone CM4 9TE