Document Index

Welcome to our ME Library for young people with ME, their families, and professionals.

You have the option of ordering printouts of these documents by post

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Quick Tour of ME symptoms, management and Tymes Trust services

What Does Your Doctor Believe? Prepared with Consultant Paediatrician Nigel Speight.

General Information on ME in Children Especially suitable for Press and Media Journalists.

Information Sheet on Jane Colby Especially suitable for Press and Media Journalists.

The Tymes Trustcard Details on the new scheme to help children with ME at school. Endorsed by the Secondary Heads Association.

Department of Health Report on CFS/ME The DOH summary for the press plus the official government response, which we welcome.

Accepting Your Illness and Learning to Manage it In the end, it is within your own control to help your body to heal itself.

Social Services and Children with ME Misunderstandings, Child Protection Procedures and Ways Out of the Nightmare by Jane Colby with sections by Max Daly (of the Big Issue), Natalie Powers (Young Person with ME), Dr Nigel Speight, and Paul Franklin (former Social Worker).

How To: Go Places and Meet People Jane gives tips on making sure your holiday really is a holiday, and summarises a few of the ways you can make those trains, planes and automobiles a little less daunting. Includes some useful telephone numbers for the UK, and London in particular.

Real Examples: Educational Modifications What you could get from schools, colleges and Open Learning.

The Enigma and the Paradox of ME A comprehensive patient's information sheet by Dr Elizabeth Dowsett.

Quick Guide to the LTSA Survey Did you know that ME is the biggest cause of long-term sickness absence from school? Here is the abstract and introduction from Long Term Sickness Absence Due To ME/CFS In UK Schools (published in the Journal of Chronic Fatigue Syndrome in 1997) plus the original press release which summarised the results. See the next document for more background information.

Does ME Cluster in Schools? This paper by Dr Elizabeth Dowsett describes a five-year study into ME in UK schools published in 1997. Introduction from Jane Colby.

Virus - What Virus? By Dr Elizabeth Dowsett (introduction by Jane Colby). A discussion of evidence for and against a viral cause for ME.

"Learn and Live" - a guide to the Open University By Anna Grace Lidstone (Editor of TYMES).

Diet in ME - is it such a big deal? Compiled with advice from Dr Alan Franklin (consultant paediatrician and ME and allergy specialist) and Dr Elizabeth Dowsett.

Herbal Remedies - are they really safe? Pharmaceutical expert Mike Valentine discusses herbs and their uses, and compares them with conventional medicine.

Graded Exercise - does it really work? A discussion of this controversial treatment.

How To: Make your voice heard in the press

How To: Start up a Social Group (as distinct from a support group)

Personal Experiences: Other People's Attitudes.

Why we have developed a plan of action for ME Complete reprint of an article which appeared in GP Magazine (July 9th 1999) showing how GPs can facilitate the education of children with ME.

Childhood ME This document forms part of the material being used as "work in progress" by the Chief Medical Officer's Working Group on CFS/ME. This is a sizeable document with Medical, Educational and Social Services sections. If ordering by post printouts will cost £3:50 - please send cheques payable to "Tymes Trust" (payment in stamps is an acceptable alternative).

Brain Problems in ME/CFS A comprehensive review of the effects of ME on the brain (for families and professionals) by Dr EG Dowsett MB ChB.Dip.Bact.

What is ME/CFS? A short introductory leaflet for doctors, prepared by Dr EG Dowsett MB ChB.Dip.Bact.

Guidelines for Schools was written as a concise photocopiable resource for UK schools, including symptoms of ME; implications for schools and practical guidance on pupil management. Medically accredited and supported by Her Majesty's Inspectorate of Schools.

ME and Learning - Problems and Solutions This document answers questions such as "How long is it reasonable for my pupil to have home tuition?" giving medical evidence. Relevant to all educational professionals.

Focusing on Children The full text of an article by Jane Colby which appeared (abridged) in the CFIDS Chronicle of America in early 1998. If you are interested in Jane's guiding principles for achieving educational success, read this.

Rehabilitation in ME An article by Dr EG Dowsett on learning from the Polio experience when treating ME. Previously published in TYMES.

ME - What Every School Should Know was written for the First and Best in Education pages on the UK Schools Internet site, a few months before the book ME - The New Plague was published. This is an updated version.

Britain and the USA Fail to Agree Dr EG Dowsett contrasts the Royal Colleges' report on ME/CFS (1996) with the superior document from the USA Public Health Service.

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